Saturday, April 28, 2012

Things gone awry

Health wise I am in a pretty bad state.  What I assume to have bene caused by long-term use of high dose steroids has pretty much destroyed all the muscle strength in my legs.  My legs keep giving way, it takes me five minutes to get out of bed and I am only to walk a few steps at the time with the aid of a crutch.  The symptoms came in within days so it's a huge shock to the system.

I am due back on Monday to have a new PICC line inserted and to receive 10 lots of chemotherapy over five days.  As well as to have another bone marrow biopsy.

Saturday, April 14, 2012


Yesterday was a fairly intensive one. In the morning the doctors were preparing to discharge me and to return on Monday. However, they then decided that I had to have my Hickman Line removed as that is more than likely the cause of my infection, and that I should be kept inside.

Normally it is a quite easy procedure and takes about 20 minutes. In my case however it took nearly 90 minutes as it had been in for sometime and it was rather attached to my body. Loads of blood over the bed and lots of discomfit.

Later on the doctor had to return to insert a cannula so I can continue to receive my antibiotics whilst I am still here. The cannula managed to leak during the night so a wee bit more blood splashed around for ones amusement.

They said they are going to insert a new Hickman Line early next week so I can continue to receive my chemotherapy as the chemo drugs are not suitable to be administered via a cannula due to their toxicity.

Wednesday, April 11, 2012

Emergency admission

Been spending a fair bit of time travelling back and forth to the hospital over the past few days. Yesterday, they decided to admit be as an emergency due to very high temperature, completely
neutropenic and a very probable chest and urine infection.

Wednesday, April 04, 2012

Bad sickness

Been having to take loads of anti-sickness meds recently due to constant feeling of nausea and vomiting. I am currently on 3 different anti-emetics: cyclizine, ondansetron and also domperidone. Neither of which seem to be having the desired effect, rather just seem to cause more side effects.